SCI Organizations
Getting Back Up helps those living with a spinal cord injury improve their quality of life today by providing goods and services which can help make a difference in someone's immediate situation. Provides individuals with funding for participation in exercise-based recovery programs and the purchase of adaptable products. These programs and products have been proven to greatly improve the physical and emotional well-being of the injured individual. Unfortunately, insurance often fails to provide the tools needed to truly improve one’s quality of life. Getting Back Up exists to help bridge that gap and improve a person’s immediate situation.
Location: Westlake, Ohio
Services Provided: Funding for exercise-based recovery programs, purchase of adaptable products
Website: www.gettingbackup.org
Location: Westlake, Ohio
Services Provided: Funding for exercise-based recovery programs, purchase of adaptable products
Website: www.gettingbackup.org
Triumph Foundation offers programs that assist a person from the beginning of their injury with the care basket outreach; down the road to recovery getting the necessary goods and services to achieve independence through keep moving forward grant and exchange program; and then assist a person with SCI to reemerge into the community by helping them emotionally through SCI support groups and restore a sense of life and adventure through adaptive recreation activities. The foundation is a force in the community that is a critical resource to people living with paralysis.
Location: Las Angeles, California
Services Provided: Keep Moving Forward Grants, Equipment & Supply Exchange and Employment Achievement Award that provides financial assistance to people with SCI to return to work.
Website: www.triumph-foundation.org
Spinal Cord Injury Foundation (SCIF) seeks to enable those living with a spinal cord injury (SCI) to become independent and employable through further education. SCIF provides Educational scholarships to develop a skill set which can be used in a career. Also Mentoring to scholarship recipients who can use advice and assistance in transitioning to a career after an SCI. Provides awareness of the challenges of having an SCI and prevention of future accidents.
Location: Ann Arbor, Michigan
Services Provided: Educational Scholarships, Peer Mentoring
Website: www.spinalcordscholarship.org
Chris Norton Foundation Chris Norton Foundation is a nonprofit organization dedicated to helping people with spinal cord and neuromuscular disabilities live their best lives. The Norton Foundation provides invaluable tools, therapies, adaptive camps and research to millions of people. Their goal is to help people with neuromuscular injuries and disabilities overcome their obstacles, and live better lives.
Location: Westlake, Ohio
Services Provided: Adaptive equipment, Adaptive Camps and information resources
Website: www.chrisnorton.org
First Step Foundation is a 501(c)3 organization whose mission is to improve the lives of individuals with spinal cord injuries, neurological disorders, and any life-altering injury or disorder by providing scholarships for specialty recovery program called the Neurological Reengineering to enable people to continue on their path to recovery, regardless of any financial constraints. The First Step Foundation helps provide to the cutting-edge, game-changing Neurological Reengineering Program. Our board aims to grow the program, extend its reach, and impact as many lives as we can. Since its inception in 2014, the First Step Foundation has provided over $225,000 in training scholarships and over $40,000 in specialized equipment for the Neurological Reengineering Program.
Location: Westlake, Ohio
Services Provided: Scholarships for: specialty recovery program and training. Also provides assistance in the purchase of specialized equipment
Website: www.barwis.com/first-step-foundation
United Spinal Association United Spinal Association is a nonprofit membership, disability rights and veterans service organization. The mission of United Spinal Association is to improve the quality of life of Americans with spinal cord injuries or disorders. Since 1946, United Spinal Association has been advocating for civil rights for people with disabilities with the hope of maximizing personal independence and quality of life for people with disabilities. They also have a “Help Desk” service and will assist You with Spinal Cord Injury Resources, Guidance, Answers, Peer Support, and Community.
Location: Westlake, Ohio
Services Provided: Veterans Assistance, "Ask Us" Spinal Cord Resource Help Center Services, Product & Services Directory
Website: www.unitedspinal.org
Christopher & Dana Reeve Foundation services include:
information specialists providing support in over 170 languages. Peer & Family Support Programs fosters peer-to-peer support, via trained and certified mentors. Quality of Life Grant Program focus on programs or projects that foster community engagement and involvement, while promoting health and wellness. Military & Veterans Program (MVP) supports the unique needs of current service members and veterans, regardless of when they served or how their injury was obtained. Advocacy/Policy Programs are designed to not only help individuals advocate for themselves, but also to advance important issues for the greater community of individuals with paralysis.
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Location: Short hills, NJ
Services Provided: Information Specialist, Peer & Family Support Programs, Grant Programs & Military and Veterans Programs and Advocacy/Policy Programs.
Website: https://www.christopherreeve.org/
Freedom To Live Foundation (FTL) provides a “campus living” Independence Training Program for SCI individuals who desire to achieve independence and a better quality of life. Recipients achieve this for themselves by being provided the time, support and collegial-like living environment to learn and practice the life-long, necessary skills that will enable them to manage, direct and take back control of every aspect of their life after leaving rehab, moving home or transferring from a long-term nursing facility. FTL applies all of its energy and effort into finding “what can be” for our recipients rather than merely settle for “what is.”
Location: Encinitas, CA
Services Provided: Provides a “campus living” Independent training program for SCI individuals
Website: http://www.freedomtolive.org/
Challenged Athletes Foundation offers several programs such as: CAMPS and CLINICS that provides support and coaching to individuals who have suffered a traumatic injury. CHALLENGED ATHLETES FOUNDATION GRANT PROGRAM, MILITARY PROGRAMS for the mental and physical well-being of veterans , military personnel and First Responders. The COMMUNITY & EDUCATION PROGRAMS were created in an effort to change perceptions about people with physical challenges. CAF provides key information, resources and opportunities through community outreach, awareness and education programs.
Location: San Diego, CA
Services Provided: Provides Camps & Clinics, Grant Program, Military Programs, Community and Education Programs.
Website:
Spinal Injury 101 explains in detail everything you should know about spinal cord injury & recovery. Provides helpful resources, and credible organizations and websites.
Location: Atlanta, GA
Services Provided: Links to helpful resources, and credible sci organizations & websites
Website:
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Spinal Cord Injury Network International offers various sci information & resources. Also has a Audiovisual Lending Library.
Location: Santa Rosa, CA
Services Provided: Provides Educational Information for SCI individuals and has a Audiovisual Lending Library
Website:
Spinal Cord Injury Grants are available from private, government, and nonprofit organizations, and offer support and funding for specific needs that does not have to be paid back.
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Location: Tampa, FL
Services Provided: Provides Grant assistance for SCI individuals
Website: www.spinalcord.com
Science Daily The site offers readers breaking news about the latest scientific discoveries and provides the latest research news and top science headlines about spinal cord injuries.
Location: Rockville, MD
Services Provided: News articles in the latest scientific discoveries
Website:
Clinical Trials is a database of privately and publicly funded clinical studies conducted around the world. resource provided by the U.S. National Library of Medicine.
Location:
Services Provided: It provides available SCI studies in your area.
Website: https://clinicaltrials.gov/ct2/home
SPINALpedia serves the needs of thousands of individuals and families affected by a spinal cord injury (SCI) from all over the world. We are here to empower our community through our shared SCI knowledge, voices and stories. Our motto is "See it, Believe it, Do it-- The Power of Experience!""
Location:
Services Provided: It provides a social mentoring network and video archive.
Website: https://spinalpedia.com/
Backbones“Connects people with spinal cord injury and their families is what we do. Through one-on-one pair ups or an event near you, BACKBONES makes it easy to meet others with similar background, injury and interests.”
Location:
Services Provided: It connects people with communities, creating events and experiences that promote awareness and engage people of all abilities
Website: https://backbonesonline.com/